P086 The French clinical research network in cystic fibrosis more than 10 years of positive experience in clinical research for patients

Introduction: The French clinical research network is a platform called “Plateforme Nationale de Recherche Clinique” (PNRC), it was created in 2009 under the guidance of patients’ organisation Vaincre la Mucoviscidose and investigators from ECFS-CTN to promote CF France. Objectives: We aim describe 1) most relevant actions carried out by since 2009; 2) which pitfalls were encountered how they’ve been managed; 3) future plans could be addressed. Methods: An assessment activities has led coordinators steering committee. Pitfalls successes identified after SWOT analysis (Strengths, Weaknesses, Opportunities & Threats) data collected European registries. Results: important performed increase inclusions improve quality were: creation coordinator positions, tool included registry monitor inclusion trials, assistance carrying studies helping centres organize their activities, brochure for patients relatives, regional newsletters, an online trial finder. This revealed that 245 (158 academic 87 industrial) have taken place France over last 14 years more than 20% (1575) at least participated one study. Conclusions: PNRC efficient collaborative network, dynamic group allowing projects run number inclusions. Today become key player national international ready innovative trials.